‘Joe Doran’s Huntington’s Walk’ – a fundraiser being held to raise awareness and funds for people impacted by Huntington’s Disease – is taking place on Saturday, July 23rd in Boyle.
Participants are being invited to gather from 10 am at Lough Key Forest Park, Boyle, Co. Roscommon, where the walk will begin at 10.45 am. The park, located just off the N4 between Carrick-on-Shannon and Boyle, is a beautiful spot for a stroll and a picnic.
The 5km walk is being held in aid of those impacted by Huntington’s Disease (HD), a cruel hereditary illness which affects the body’s nervous system. It can cause changes with movement, learning, thinking and emotions. The disease takes away life skills bit by bit, slowly killing brain cells and relentlessly impacting on cognitive ability, memory, decision-making, mobility, swallowing, speech, and much more.
About 400 people in Ireland have registered as having the gene associated with the disease, while a further 700 have HD, and 5000 are impacted by it.
In all of Ireland there is only one unit equipped with specialised staff to tackle the disease. This unit, located in Bloomfield Health Services in Dublin, has only 24 beds, which are in great demand. The staff there are amazing.
Nursing homes for the elderly, as good as they are, are really are not suitable for those suffering with the disease. Most people start showing symptoms as young adults.
Joe Doran’s wife Pauline says: “As a wife and mother of HD sufferers, I couldn’t fault the help and support we got from local services. It took five years of hard work, of begging, pleading, letters, emails, phone calls and going to see politicians, anyone I thought could help. Joe is happy, safe and well looked after but there are many more out there that need our help, so please support us in whatever way you can”.
For more information/to support this worthy cause, register or donate at idonate.ie/fundraiser/JoeDoranHDWalk.